There is an upcoming fundraiser for Jordyn and our family. If you are interested in donating items, money or coming to it, we would really appreciate it!

Oh, and to update on Jordyn. She hasn't been feeling well since yesterday. She had a fever and we were in the emergency room last night until around 2 am. They sent us home after a dose of antibiotics. Jordyn ended up being pretty sick in the night and woke up with a fever still. She slept all day pretty much only waking up for about forty five minutes. She woke up at about 5:45 finally. I worry when she throws up because of the other condition she has that can cause severe acidosis in kids like her, which can be very scary and dangerous.

Clinic and some Fun!

I feel like it has been a long time since we have been able to do much fun things, so these last two weeks have been a ton of fun. Jordyn is already tired most of the time, so she has been completely exhausted from all that we have been doing, but loving every second of it. We took her camping over the weekend with our friends and her best friend, and she had the greatest time ever. (I tried to post camping pictures on here, but they wouldn't upload...) The biggest change I think is that she actually takes a nap most days. We took her to clinic on Thursday and her ANC was 600, which is still lower than they would like. The doctors would love to keep it around 1000, but she is continuing her chemo at this point. I personally think they are worried about having her off of the chemo for too long of a period of time because that is what is keeping the cancer away and so they are keeping her on even the chemo even though her immune system is low because she has spent a lot of maintenance off of chemo because of a low immune system and that is kind of scary if you ask me. Anyway... Here are some pictures from clinic.

Pardon the size of the pictures... Blogger changed the way you do pictures and apparently I don't know what I am doing...

Here she is about to be accessed. It was not a good poke because I forgot to put the numbing cream on her that morning... She ended up screaming when the needle went in... I can see why though, it is a big needle and it is in her abdomen... I felt so bad...

Getting blood drawn so we can know what her counts are.

Doctor listening to her back

She loves her doctor!

They play so well together. He really cares about the kiddos!

Here she is getting her chemo. The vincristine is a fast push over a minute.

Playing with train tracks at clinic (I wish it wasn't on the floor, but I couldn't convince her to keep using the table...)

ANC 800

Jordyn's ANC needed to be at 700 to restart chemo and it was 800 on Friday, so she is now taking her oral chemo again, but is on half the dose because it took her immune system out at the higher doses. Now every week she will have 5 1/2 less pills to take, and we are hoping she will be able to keep her immune system up so that she can live more "normally". (Maybe normal is to strong of a word... Normalcy is a far cry from where we will be, but at least we will be closer to a cancer maintenance "normal".) She will have clinic and iv chemo next week, and we should hopefully know then how her counts are doing, and if she is maintaining like the doctors want her to.

Jordyn's Video

Sorry I am kind of late posting this... I haven't been feeling the greatest so I hadn't worked on it like I had hoped to. Here it is! Jordyn's Video

Sorry I haven't been posting much

I have been doing more updating on the facebook page if you are interested in checking it out. Here is the link again: We would love more fans on there as well, so spread the word and get people to like her page! Please, and Thank you!

Jordyn had an appointment and her counts were still low (ANC 400), so she has been taken off chemo pills for 2 weeks at least until her counts come up. I worry when she is not on chemo, but at the same time, I adore it! She has so much energy, and I swear, I hear her giggle in those times so often it makes my heart happy. She really just isn't as happy when she is on chemo, and she definitely doesn't have as much energy. It is hard though because it gives me little glimpses at my child as an almost normal child that she hasn't been able to be for almost a year.

Jordyn and little Jeremy both managed to catch a cold this week, and now I am coming down with it as well. We got out more than we probably should have and now we are dealing with it. Hopefully they get better soon. They both sound completely miserable, this is a bad cold... Thankfully Jordyn has yet to spike a fever, so no hospital visits yet. Fingers crossed it stays that way....

Jordyn made her wish, if you care to see the pics from that, check them out on facebook. They are pretty cute I think!

This next week is going to be a hard one on me, I think... Jordyn's anniversary of her diagnosis day and her crazy week last year is coming up... I think I am going to be a complete mess this next week... It was exactly a year ago today that I started having a really bad, foreboding, worried feeling about her. She was admitted on the 9th, and she was diagnosed on the 12th.

I figured a fitting thing for this blog post was to share some of the old pictures from this last year of some good and bad times she went through.

I am also going to try to finish up her latest video by the 12th to share with everyone on here and on facebook.








>




































































>