Christmas and a New Year

The day Jordyn came home from the hospital she was sooo happy to be home, but she was also super tired. Some of my family was up and Jordyn didn't even want to wake up to open some presents from them since she was sooo tired...

I cannot believe I was actually able to get a picture of both of my kids holding still long enough to not have a blur or a silly face.

Here is Jacob and the kids right before presents.

And here is me and the kids right before presents.

Jordyn has been extra sleepy and tired since we have been home. She gets sad a lot because she says her whole body hurts. She hasn't been walking much or doing much other than sitting on the couch because her legs hurt too much. I think the pain is gradually lessening, as I am seeing her gradually doing more playing and walking in the last week or so, and I don't have to carry her to the bathroom when she has to go anymore.

She has been a lot happier the last couple of days. She gets super excited to open and have us read her the letters and cards she has received.

Her last port access was miserable for everyone involved. Normally she does really well, but she had a bad experience when she was in patient and was accessed (poked with a big needle) without any numbing cream WHILE she was sleeping (I was sleeping too, until she started screaming...) When I tried to de-access her(she needed the needle changed) she freaked out. When the nurse got here, Jordyn was sooo scared, and it took a bit longer than usual.

She has been super scared a lot more lately, but she has also shown how much she loves those around her more as well. She usually knows when someone needs a hug, and gives them freely, and then makes sure to ask if that helps you to be happy.

Oh, and a new development has arrived... Peach fuzz! Jordyn is so happy that she is growing her hair back, and says she wants to grow it really long, just like her friend, who has long hair because "she doesn't have chemo".