Jordyn's Journey to Triumph Over ALL (Acute Lymphoblastic Leukemia)

Saturday, June 22, 2013

ANC 800

Jordyn's ANC needed to be at 700 to restart chemo and it was 800 on Friday, so she is now taking her oral chemo again, but is on half the dose because it took her immune system out at the higher doses. Now every week she will have 5 1/2 less pills to take, and we are hoping she will be able to keep her immune system up so that she can live more "normally". (Maybe normal is to strong of a word... Normalcy is a far cry from where we will be, but at least we will be closer to a cancer maintenance "normal".) She will have clinic and iv chemo next week, and we should hopefully know then how her counts are doing, and if she is maintaining like the doctors want her to.

Friday, June 14, 2013

Jordyn's Video

Sorry I am kind of late posting this... I haven't been feeling the greatest so I hadn't worked on it like I had hoped to. Here it is! Jordyn's Video

Thursday, June 6, 2013

Sorry I haven't been posting much

I have been doing more updating on the facebook page if you are interested in checking it out. Here is the link again: We would love more fans on there as well, so spread the word and get people to like her page! Please, and Thank you!

Jordyn had an appointment and her counts were still low (ANC 400), so she has been taken off chemo pills for 2 weeks at least until her counts come up. I worry when she is not on chemo, but at the same time, I adore it! She has so much energy, and I swear, I hear her giggle in those times so often it makes my heart happy. She really just isn't as happy when she is on chemo, and she definitely doesn't have as much energy. It is hard though because it gives me little glimpses at my child as an almost normal child that she hasn't been able to be for almost a year.

Jordyn and little Jeremy both managed to catch a cold this week, and now I am coming down with it as well. We got out more than we probably should have and now we are dealing with it. Hopefully they get better soon. They both sound completely miserable, this is a bad cold... Thankfully Jordyn has yet to spike a fever, so no hospital visits yet. Fingers crossed it stays that way....

Jordyn made her wish, if you care to see the pics from that, check them out on facebook. They are pretty cute I think!

This next week is going to be a hard one on me, I think... Jordyn's anniversary of her diagnosis day and her crazy week last year is coming up... I think I am going to be a complete mess this next week... It was exactly a year ago today that I started having a really bad, foreboding, worried feeling about her. She was admitted on the 9th, and she was diagnosed on the 12th.

I figured a fitting thing for this blog post was to share some of the old pictures from this last year of some good and bad times she went through.

I am also going to try to finish up her latest video by the 12th to share with everyone on here and on facebook.