Jordyn's Journey to Triumph Over ALL (Acute Lymphoblastic Leukemia)

Tuesday, September 30, 2014

Jordyn is doing really well at the moment

I know I owe you all an update... Sorry it has taken so long. Jordyn rang the bell and it was a fantastic day! She had her last lp that day and they gave her a cupcake for finishing up. She loved it! It was a great day and a little emotional too.

She got her port taken out a week after her last iv chemo. She was pretty nervous... So was I.... I am not sure if you remember, but when she got her port placed two years ago, she screamed and cried and wouldn't let us buckle her up and then she refused to talk to me for a week. I was afraid that might happen again, but of course it didn't (now that she isn't 3 anymore, she understands more, and knows I love her). She has realized that I am not the one causing all the hard things, and that I am just the one there to help her through it all.

She had a really hard time coming out of anesthesia this time around. The breathing tube they had put in caused her to cough a lot, and she was in a lot of pain when she woke up from surgery. They gave her some medicine to help with the pain, and then her oxygen stats were going super low, so they had to keep her on oxygen for a few hours. We eventually were allowed to leave the hospital that evening. She felt much better the next day.

Jordyn took her last chemo pill on June 11th. We celebrated by inviting some friends over and having a beautifully fabulous cake! Thanks to Icing Smiles and their amazing baker Kristina for the most incredible cake I have seen! It was absolutely PERFECT for her! We cut into it and found the funnest surprise of rainbow cake! The kids loved it and all wanted part of the rainbow to eat. Jordyn carried the ponies she got on top of the cake around for weeks. She loved them.

We have so far went to one oncology check up appointment. She had to go to lab first, and they did a finger poke to get some blood for the cbc. Jordyn got a small prize for being brave. Then we headed up to clinic. It was the shortest visit ever! I loved how simple it was and how fast it was! Jordyn's counts were fabulous and some of them were almost "NORMAL"! I have never seen her blood counts in "normal" ranges for a "normal" kid. They are always "normal" for a cancer child, but never close to what an average person is. I am hoping her counts are still doing that well when we go in for her next appointment this Thursday. I think her checkups will always make me nervous, because there is always the chance that the counts will show that her cancer has returned and I don't think I could handle that. We are still praying for her to stay in remission. The first six months are the most scary to get through because most relapses happen during that time, but I do have many friends whose children have relapsed after the two year mark, so it is always a concern. Now that she is through her treatment, I have the worries that she may have some latent side effects as she grows up. That is another scary thing to think about...

Jordyn started Kindergarten this month and she is loving it for the most part, although she has had some run ins with bullies... She has a little friend who was being bullied and she stuck with her and now I think they are targeting her as well. I am hoping that resolves itself soon... She is such a sweetheart and has such love for everyone and hates to see anyone being teased or made fun of in any way.