Jordyn's Journey to Triumph Over ALL (Acute Lymphoblastic Leukemia)

Monday, July 8, 2013

There is an upcoming fundraiser for Jordyn and our family. If you are interested in donating items, money or coming to it, we would really appreciate it!

Oh, and to update on Jordyn. She hasn't been feeling well since yesterday. She had a fever and we were in the emergency room last night until around 2 am. They sent us home after a dose of antibiotics. Jordyn ended up being pretty sick in the night and woke up with a fever still. She slept all day pretty much only waking up for about forty five minutes. She woke up at about 5:45 finally. I worry when she throws up because of the other condition she has that can cause severe acidosis in kids like her, which can be very scary and dangerous.

Tuesday, July 2, 2013

Clinic and some Fun!

I feel like it has been a long time since we have been able to do much fun things, so these last two weeks have been a ton of fun. Jordyn is already tired most of the time, so she has been completely exhausted from all that we have been doing, but loving every second of it. We took her camping over the weekend with our friends and her best friend, and she had the greatest time ever. (I tried to post camping pictures on here, but they wouldn't upload...) The biggest change I think is that she actually takes a nap most days. We took her to clinic on Thursday and her ANC was 600, which is still lower than they would like. The doctors would love to keep it around 1000, but she is continuing her chemo at this point. I personally think they are worried about having her off of the chemo for too long of a period of time because that is what is keeping the cancer away and so they are keeping her on even the chemo even though her immune system is low because she has spent a lot of maintenance off of chemo because of a low immune system and that is kind of scary if you ask me. Anyway... Here are some pictures from clinic.

Pardon the size of the pictures... Blogger changed the way you do pictures and apparently I don't know what I am doing...

Here she is about to be accessed. It was not a good poke because I forgot to put the numbing cream on her that morning... She ended up screaming when the needle went in... I can see why though, it is a big needle and it is in her abdomen... I felt so bad...

Getting blood drawn so we can know what her counts are.

Doctor listening to her back

She loves her doctor!

They play so well together. He really cares about the kiddos!

Here she is getting her chemo. The vincristine is a fast push over a minute.

Playing with train tracks at clinic (I wish it wasn't on the floor, but I couldn't convince her to keep using the table...)