Jordyn's Journey to Triumph Over ALL (Acute Lymphoblastic Leukemia)

Thursday, July 10, 2014

Final chemo is coming up!

Jordyn has been doing really well lately. She graduated from preschool and will start Kindergarten in the fall. She has some big things coming up soon! She will have her last chemo infusion on July 21st! And then she will take her last chemo pill on August 16th, just in time to start Kindergarten! It is really exciting and a little bit scary all at the same time. It will be kind of nerve racking knowing she won't have anything in place to keep the cancer from coming back, but good to know that she can live a fairly normal life as long as everything plays out the way we hope it will. The first 6 months off of treatment there is a higher risk of relapse, and that is scary to think about. Even after that there is still risk of the cancer returning or a secondary cancer, or other health issues as a result of her treatments that saved her life. We are just trying to not think about what bad things could happen and enjoy her being able to be a normal kid with normal kid problems. She will continue to go to the oncology clinic to be checked on every month for at least the first six months and then it tapers down after that until she is seeing them just once a year, which she will do until she graduates from high school. It will still be something that will impact her life, no doubt about that, but hopefully the impact continues to lessen as time goes by. She is in a study that will also follow her as she grows up to see what other issues she may develop as a possible result of the treatments. That keeps me confident and it gives me hope for those who come after her that they will know better the long term side effects of cancer treatment in very young children.

Oh, and I forgot to mention, she lost her first tooth and then two days ago, she lost her second tooth! She is super excited about this!