Jordyn's Journey to Triumph Over ALL (Acute Lymphoblastic Leukemia)

Wednesday, June 20, 2012

Having Jordyn Home / Missing Her Brother

Jordyn came home Saturday evening. Her ANC or absolute neutrophil count is still at 0, which means she has zero capability to fight off infection, so she is on iv antibiotics 3x's a day until they go up to 500. She has a picc line in her arm. That is basically a long line that goes from her arm to about the top of her heart that makes it easier to give her iv medicine and to draw blood. The doctors are wanting to eventually do a port under her skin, but with her neutrophils and her platelets so low, they wanted to wait until they come back up since it is too big of a risk for infection and bleeding.

She is gradually feeling better. She still is sleeping a ton, most likely tired since her blood counts are so low. She is actually eating too, which is a huge step in the right direction.

Her little brother has been staying at his grandma's house during our last little bit of stay in the hospital, and while we got her settled back in at home. He came home on Monday, and that evening he was REALLY sick with a stomach bug. We have been so careful with washing our hands and keeping surfaces sanitized since Jordyn came home, so hopefully she doesn't get a stomach bug on top of everything else... He went back to stay with grandma yesterday to protect us and his sister, and we are sure missing him a ton. Before this point I had only ever spent one night away from the little guy, but he will be coming home to us soon.

Jordyn sure loves the little guy also and she misses him too.

They are always getting into things together.

They are such good friends.

We are hopeful that they will be able to play together again soon.


  1. What a sweet little girl. Our prayers are with your family. We love you all.

  2. This is such a good cause. I am praying for you and I donated some money to help. I used the donate button at the top. We Love You!

  3. Hello Jacob and family,

    Brady and Tiz called to tel me your news earlier this week. My husband and I are crushed to hear of your daughter's diagnosis. Our daughter has ALL as well. She was diagnosed at 2 years old and is about to finish treatment this fall. We know of the long hours you have and will spend at the hospital. Those first 6 months are a rough go, but know there is light at the end of the tunnel. It gets better. We are praying for you. I put your names on the temple prayer roll last night. I would be happy to talk to either of you any time.

    Love to you all,
    Sally Bluhm (Maynes)