Jordyn's Journey to Triumph Over ALL (Acute Lymphoblastic Leukemia)

Wednesday, December 18, 2013

Fun Stuff, Clinic, and More Fun Stuff!

Jordyn has been wanting to go ice skating for a long time. We took her to the Gallivan Center with Make a Wish a few weeks ago, and she has wanted to go back ever since, even though we only made it around less than one time... Anyway... She really wanted her aunt Ashlee to go with her, so she made a special trip up to come ice skating with us! This time we went to an indoor rink. It was a lot less busy, the ice was smoother, and we had a bunch of fun! We made it around at least twice, maybe more with both of the kids, and then we each took turns skating around while the kids rested on the side and clapped for us.

Make a Wish invited us along for a ride on the North Pole Express. We were able to take a little ride on the Heber Creeper, and rode it to the "North Pole" to see Santa Clause. It was a fun ride, and I think the kids enjoyed it and getting their tickets punched. The kids were able to sit on Santa's lap, and then they were able to chose a gift for each of them. They had a great time. If I remember, I will try to scan in the pictures that were taken on Santa's lap, and share them on here.

Hope Kids invited us to go see the Nutcracker dress rehearsal with them. Jordyn loved this both last year and this year. She especially loved dancing in the aisles like the dancers were doing on stage.

We had clinic on Thursday, and it ended up being a really long day. They have continued her on the new antibiotic that runs over an hour, and it seems to have made a significant difference in her counts. They are usually WAY higher, unless she is sick like over the week of Thanksgiving. Because of that, she is now back at 50% chemo, which is not preferred... They are going to have home health come out in about two weeks from her appointment to check blood counts and hopefully up her chemo again. Her port has been causing problems lately. (her port is what was surgically inserted into her body to make drawing blood and administering chemo, fluids, and other iv meds easier on her) The last time home health was out, she had to get a peripheral iv put in to draw her blood because her port wasn't drawing back, yet again... It still wasn't working when we went to clinic, so they had to order cath flow, which took about 1.5 hours to get up to clinic... Because it took so long, I had to figure out what to do with Jeremy since the wonderful person watching him had plans and I wasn't going to make it on time. Luckily, her son was able to stay with him, and I am sooo grateful for that!

Thankfully we got some fun out of it! Roxy the therapy dog visited while we were there, and Jordyn absolutely loved it!

Jordyn was surprised with a Christmas stocking that had some fun surprises in it, including her absolute favorite thing she got, lipstick... She actually does a really good job putting it on by herself without getting it everywhere! Lol!

We had a church ward Christmas party/breakfast on Saturday. It was yummy and gave the kids another opportunity to see Santa!

The kids had a dance recital at a retirement center, and both did really well! Jeremy even did a move he hadn't done before!

We went to Temple Square to see the lights with my little family, my sister, my mom and dad. It was cold, but pretty!

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