Jordyn's Journey to Triumph Over ALL (Acute Lymphoblastic Leukemia)

Thursday, February 21, 2013

We are getting close...

Today was the last chemo in this current phase of treatment... This means, that if counts are good, Jordyn will be starting Maintenance in two weeks!!! This means her chemo regimen will be changing fairly drastically (in a good way!)

She still gets really scared when we go to clinic. I actually think she may get more scared now than she used to.

On the way home from clinic, Jordyn told me, "Mommy, I don't like going to the doctor. There are too many scary parts..."

This is one of the scary parts that she hates. She doesn't like getting poked, and is terrified every time... Here is a picture of her port accessed before the bandage was put on to keep the germs out.

Toys help her to be brave.

After those scary parts are over Jordyn is much happier and she told me she was this happy face on the scale. She tends to read it more as an emotion scale than a pain scale.

She likes to sit in my lap when she is scared. She seems to think that Mommy can make things less scary.

This is the doctors notes on how her maintenance chemo will work. She will get Vincristine 1x a month, a lumbar puncture only every 3 months with interthecal methotrexate(rather than monthly), 5 days a month every month of steroids, 6MP oral chemo every day till she is through her treatments, continue antibiotics every Monday am and pm and Tuesday am and pm, and 1 oral methotrexate every week.

Roxy came to visit the clinic today.

She danced for Jordyn.

We all thought it was pretty cute that Jordyn and the dog matched!

Jordyn is still seeming to handle the methotrexate really well. Her body has begun adapting pretty well to it, and the medicine we have her on for nausea has been a huge help in keeping her from being super sick. She is super tired today from chemo and from a busy day we had yesterday, so she is taking a nap. I have my fingers crossed that she does this well in maintenance! Cancer will still be a huge thing in our lives, but we can start gradually doing normal things and will be able to leave the house more often(although, normal as we once knew it will never return or be the same)...

1 comment:

  1. Yay! Good luck! Our thoughts and prayers are with you Jordyn!