Jordyn's Journey to Triumph Over ALL (Acute Lymphoblastic Leukemia)

Tuesday, January 1, 2013

Christmas and a New Year

The day Jordyn came home from the hospital she was sooo happy to be home, but she was also super tired. Some of my family was up and Jordyn didn't even want to wake up to open some presents from them since she was sooo tired...

I cannot believe I was actually able to get a picture of both of my kids holding still long enough to not have a blur or a silly face.

Here is Jacob and the kids right before presents.

And here is me and the kids right before presents.

Jordyn has been extra sleepy and tired since we have been home. She gets sad a lot because she says her whole body hurts. She hasn't been walking much or doing much other than sitting on the couch because her legs hurt too much. I think the pain is gradually lessening, as I am seeing her gradually doing more playing and walking in the last week or so, and I don't have to carry her to the bathroom when she has to go anymore.

She has been a lot happier the last couple of days. She gets super excited to open and have us read her the letters and cards she has received.

Her last port access was miserable for everyone involved. Normally she does really well, but she had a bad experience when she was in patient and was accessed (poked with a big needle) without any numbing cream WHILE she was sleeping (I was sleeping too, until she started screaming...) When I tried to de-access her(she needed the needle changed) she freaked out. When the nurse got here, Jordyn was sooo scared, and it took a bit longer than usual.

She has been super scared a lot more lately, but she has also shown how much she loves those around her more as well. She usually knows when someone needs a hug, and gives them freely, and then makes sure to ask if that helps you to be happy.

Oh, and a new development has arrived... Peach fuzz! Jordyn is so happy that she is growing her hair back, and says she wants to grow it really long, just like her friend, who has long hair because "she doesn't have chemo".


  1. So glad to see an update - Jordyn and your family have been on my mind! I discovered yesterday that my original card was returned back to me because I wrote your address incorrectly, but I fixed it and put it back in the mail! A couple of things may come out of order, though. :)

    Jordyn sounds braver than me. I'd hate to be poked in the middle of the night by a huge needle while I'm sleeping!!! Sounds terrible. Hugs to you all with wishes of a Merry Christmas and Happy New Year!


  2. I am so happy to hear about Jordyn again and how you all are doing. I have been thinking a lot about you around christmas and new year and have prayed a lot for you all. I am glad to hear that she is excited about her hair, it is a girls dream to have beautiful hair.
    Please tell Jordyn that she is the bravest girl i ever known. Stay strong and bless you.♥

  3. Gemma; we received your letters and packages! We Loved them! Thank You! You and your family have such wonderful hearts! Sorry for not posting the last few weeks. Rollin withcarro; I'll let Jordyn know that she is the bravest girl ever! Thank You!