Jordyn's appointment was longer than usual because for her lp (lumbar puncture/spinal tap) she had to go to the same day surgery operating room because the RTU which is where we usually are didn't have any appointments left on such quick notice. Since her lp, her little back has been hurting her really badly, and she has had a headache as well. Today, she started throwing up from the chemo, and tonight after she slept for awhile, she woke up crying from how much pain she had in her back. She is feeling pretty yucky and miserable right now. I will try to post another update soon that also includes pictures from her appointment, but for now, I am going to bed. The next few days to a week could be crazy if they are anything like the last treatment with this same drug was.
And as always, we are sooo grateful for all of the love, prayers, letters, thoughts, packages, and any other ways we have been helped through this! It makes going through a difficult time so much easier. Jordyn loves getting her letters and the occasional package! It has added a bright spot to her hard days. I wish I had the time and the focus to write everyone a special thank you, but it is pretty crazy around here, so I don't know if I will be able to make that happen, but I do want you all to know that we really appreciate the thought and love you have shared with us. We have been deeply touched by the love and sincerity others, even strangers have shown to us. Thank you from the bottom of my heart!